WELCOME

Welcome to the Huntington Awareness Ride Home Page; the place where you can see the planning for this momentous ride and, once the ride has begun, you will be in almost daily contact with the participants, myself (Tracey Hender) and Damon McDonald. Huntington Disease is a little known and even less talked about genetic disease which affects almost all aspects of the sufferer's life including balance, speech, coordination and multitasking. It affects both males and females equally and, possession of the gene means that the person will generally develop symptoms around the age of 30 to 50.

In 1993, my father was diagnosed with Huntington Disease. In 98 I went through the predicitive testing procedure and discovered that I also possessed the gene. My sister received her results in September 99 - a hat trick. My cousin in Wales received his results in December and was thankfully clear. Throughout the testing, it became clear to me that very few people had heard of the disease so, Damon and I decided that we needed to do something to capture everyone's attention, create awareness of the disease and the predictive testing as well as meet others in the Huntington community - something which it is very hard to do.

We hope you will take the time to browse through the site and find out where we are going and when and more details about the ride and about the disease. If you would like to help with organisation, money, suggestions etc, please do not hesitate to contact Tracey.

Talks Throughout the Trip

Any schools, universities, clubs etc who would like a talk on Huntington's Disease, predictive testing, support etc, please contact Tracey. Please refer to the calendar for preliminary dates.

Donations

UWA Prosh 2000 Harley Owners Group Perth Ken Hanson (USA) Karen (Michael's Mother) WA Brown Grove Real Estate, Claremont WA