These are just some of my favourite resources that are relevant to Albinism,
etc., there are many great sites out there to be found. I will add to these
as I find the very best...
Bianca
Knowlton's Site - Albinism through the eyes of
Bianca
http://home.clara.net/knowlton/family/Albinism/bianca.htm
Excellent site by young lady in UK with Oculocutaneous Albinism. Definitely
need to see her description of 'What do I see?' and her parents info., very
positive attitude.
Rob McKrill's
Site
http://www.users.bigpond.com/mckrilljones/index.html
Gentleman with Oculocutaneous Albinism from Western Australia. Great autobiographical
site with fantastic attitude.
Craig Farraway's
Site
http://www.geocities.com/cfontheweb/
Gentleman with Oculocutaneous Albinism living in Canada. Really worth a visit,
has personal description of what he sees in his FAQs page.
William's Site
http://www.fuzzy-monkey.com/william/
Put together by Jackie, William's mother, who live in South Australia as well.
This great site gives another insight to the issues confronted by parents of
children with albinism.
NOAH
- The National Organisation for Albinism and Hypopigmentation
http://www.albinism.org/
Information, discussion forums, links and much,
much more all about albinism and other forms of hypopigmentation, this site
is world renowned.
The International Albinism Centre at the University of Minnesota
http://albinism.med.umn.edu/
Research professionals including clinical genetics, molecular biology, ophthalmology,
dermatology, and biochemistry, all about cause and effect of albinism and other
forms of pigment loss in people. Page titled 'Facts About Albinism' has great
basic information about albinism in easy to understand language.
Developmental / Low Vision Info.
Developing Your Child’s
Vision - The Center for the Partially Sighted
http://www.low-vision.org/children-guide.html
A Guide for Parents of Infants and Young Children with Vision Impairment. Contains
lots of information for parents on how to help their visually-impaired child's
development from infancy to school as well as general vision-impairment information.
Low
Vision Online
http://www.lowvisiononline.unimelb.edu.au/
A very informative site designed by those who
in their every day life or work need to know more about low vision. The website
aims to give an understanding of low vision and includes sections on Low Vision,
Functional Assessment, Orientation and Mobility, Children - Assessment and Training
Visual Skills.
Ideas
to Use with a Visually Impaired Infant - CanDo4Kids - Townsend House
http://www.cando4kids.com.au/DesktopDefault.aspx?tabid=80
A few simple ideas for stimulating the senses of a visually-impaired baby and
why.
An
Introduction to Dr. Lilli Nielsen's Active Learning
http://www.tsbvi.edu/Education/vmi/nielsen.htm
Dr. Lilli Nielsen has worked as special education adviser at Refsnaesskolen,
National Institute to Blind and Partially Sighted Children and Youth in Denmark
since 1967, here are some of her recommendations.
Helpful Information / Positive Experiences about Albinism
Positive
Exposure, "The Spirit of Difference"
http://www.rickguidotti.com/
Rick Guidotti is challenging the stigma associated with physical difference
through beautiful photographs of people with albinism.
Albinism Online Groups / Communities
Yahoo Groups - Albinism International
http://groups.yahoo.com/groups/Albinism_International
Worldwide membership of over 300 people with interests in albinism. Great atmosphere
and friendly, helpful support and information.
Albinism Online
Community
http://www.albinism.org/aoc.html
NOAH - The National
Organisation for Albinism and Hypopigmentation
http://www.albinism.org/
South Australia
CanDo4Kids -
Townsend House
http://www.cando4kids.com.au/
For Vision Impairment / Hearing Impairment support, early intervention and more.
Australia wide
AFA
- Albinism Fellowship of Australia
http://www.albinismaustralia.org/
Albinism Fellowship of Australia (AFA) provides support, information and fellowship
to those with albinism and their significant others. Also holding the first
ever Australian Albinism Conference in Sydney 2006 - see the website for details.
Visit South Australia
http://www.southaustralia.com/home.asp
Capital city of the state of South Australia. Come take a look at where we live.