Cancer Voices NSW (CVN)
www.cancervoices.org.au
Cancer Voices NSW is a peak advocacy organisation providing a unified voice for all people affected by cancer in New South Wales (Australia). Members belong to cancer advocacy and support groups; Cancer Voices NSW is an umbrella coalition for their combined activities. As a network, CVN provides a forum for people affected by cancer to share ideas and experiences that are common to all.
Gynaecological Awareness Information Network (GAIN)
www.gynsupport.com
This site has been set up by Kath Mazella, a passionate and well-known Australian advocate for information and empowerment for women experiencing gynaecological disease, including cancers. Kath's own experience has led her to crusade for improvement to gynaecological services for all women.
Lymphoedema Association of Australia
www.lymphoedema.org.au
This is probably one of the plainest websites on the WWW! It's also one of the most valuable! It's packed with high-quality information made freely available about the troublesome problem many cancer survivors have with lymphoedema.
Secondary Lymphoedema is the swelling of a limb due to the removal of lymphatic (often abbreviated to "lymph") nodes. Removal of the lymph nodes is a common form of surgery performed on cancer patients in order to assess whether the cancer has spread to the lymph system as the lymph system is one way that cancers can travel around the body to establish new tumours.
The lymphatic system piggy-backs the circulatory system and is responsible for clearing up the waste products generated by the immune system when repairing tissue. When the lymph nodes (for example, in the armpit for breast cancer or the groin for genital cancers) have been removed, the fluid and waste products can't be extracted from the limb and the limb swells. If not effectively treated, the swollen limb becomes extremely painful. Untreated lymphoedema leads to disablement and chronic pain in the affected limb.
The good news is that highly effective treatment is now available in Australia, although, unfortunately, at a price. Dr Judith Casley-Smith, formerly of Adelaide University, is the researcher responsible for making the treatment available in Australia and training many therapists around Australia in the method. A list of therapists (with location and phone number) trained in the method is available on Dr Casley-Smith's site.
This site is absolutely essential reading for any cancer survivors affected by lymphoedema.
Petrea King
and Quest for Life Foundation
www.questforlife.com.au
Based in Bundanoon,
in the Southern Highlands of NSW, Australia, Petrea is a qualified
naturopath, herbalist, clinical hypnotherapist, masseuse, meditation
teacher and cancer survivor. She has written several books dealing
with cancer survival and self-help, and has published 20 relaxation,
meditation and lecture tapes which are used extensively throughout
Australian homes and hospitals to help people learn to manage stress
more effectively. She facilitates meditation workshops for people
with cancer and other life-threatening illnesses. In 1999, the Quest
for Life Foundation established a Retreat Centre called the "Petrea
King Quest for Life Centre" at Bundanoon.
www.nswcc.org.au
An invaluable
resource for Australians.
CanYA
(Cancer and the Young Adult)
canya.candela.com.au
A volunteer organisation
in Sydney, Australia, aiming to support cancer patients and their
families in the 20 - 40 year age group. CanYA publishes a bi-monthly
print newsletter called "Agenda". There is a wealth of useful
information, articles and stories on this site and in the back issues
of "Agenda" provided online.
Bristol
Cancer Help Centre
www.bristolcancerhelp.org
Bristol Cancer
Help Centre
Grove House
Cornwallis Grove
Clifton
Bristol BS8 4PG
Tel & Fax: (0117) 9809500
The Gawler
Foundation
www.gawler.asn.au
The Gawler Foundation
Inc.
PO Box 77G
Yarra Junction Vic 3797
Phone: (03) 5967 1730
hosted.aware.easynet.co.uk
Focusing on breast
cancer in Britain, it contains a valuable list of
links to websites about breast cancer.
Enchanted
Mind
enchantedmind.com/health1.htm
A
fascinating site devoted to puzzles of all kinds. This link is to
a page on the Enchanted Minds website that contains an article about
health and wholeness.
Can
Do!
The Can Do! web
site -- now at:
www.ucando.org
The
focus of this website is people with a disability and what they can
do. The Can Do! attitude is proactive, creative and
has much to offer cancer patients who are looking to optimise their
quality of life. Well worth a look!
What
to do when they say "It's cancer."
Joel Nathan's
website
www.cancer5.com
Joel
is the author of What to do when they say "It's cancer".
He is an "Author, experienced cancer survivor (three times),
cancer counsellor & patient advocate". His book is reviewed on
this website. Click here for the Joel Nathan
book review
Cancerfacts.com
www.cancerfacts.com
This
amazing new website was set up in November 1999 by a group in Seattle,
USA, to assist cancer patients, families and doctors to find out up-to-date
information to help in making informed treatment decisions. It provides
a very rich resource - including searchable databases - for those
searching for information about the following cancers:
- Bladder Cancer
- Breast Cancer
- Cervical Cancer
- Colorectal
Cancer
- Melanoma
- Ovarian Cancer
- Prostate Cancer
- Uterine Cancer
Hopefully, more
"Cancer Centres" will be added in the future for other cancer
types! There are separate sections for consumers and physicians.
Children's
Cancer Resources on the Internet
http://childrenscancer.20m.com
A new website
(August 2000) which is a compilation of high-quality links for parents
of children with cancer, organised into the following categories:
Advocacy, Alternative
Therapies, Bereavement, Brain Tumors, Camps, Causes & Prevention,
Charities, Chatrooms, Listservs, etc., Diet/Nutrition, Hospitals and
Cancer Centres, Leukemia and Lymphoma, Links & Resource Lists, Medical
Flight Organizations, Medical Information, Neuroblastoma, Palliative
Care, Personal Pages, Publications, Research, Support, Wish-Granting
Organizations.
The Alternative
Therapies page has some excellent links. Check it out!
Hunter Medical Research Institute
www.hmri.net.au
A media release on the Hunter Medical Research Insitute website about the role of cruciferous vegetables, such as broccoli, in the prevention of colon cancer.
Monday, May 7, 2001.
A simple way to beat cancer? eat your greens
Thanks to Neville for alerting us to this site. - Ed.
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