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Ad 27 - Enzyme therapy - genuine or a ripoff?

Ad 26 - Supporting a friend

Ad 25 - Motivational advice for a cancer patient

Ad 24 - Peer support for Cervical/vaginal cancer

Ad 23 - Cancer of the uterus

Ad 22 - Advanced squamous cancer

Ad 21 - Depression after pancreatic cancer diagnosis

Ad 20 - Newly diagnosed with adenocarcinoma

Ad 19 - Positive attitude and a clincial trial but where are my friends?

Ad 18 - What should I expect with pancreatic cancer?

Ad 17 - Advanced pancreatic cancer - making contact with others

Ad 16 - Chronic Myloid Leukemia - making contact with others

Ad 15 - Non-Hodgkins Lymphoma - making contact with others

Ad 14 - Secondary Liver Cancer - final stage

Ad 13 - Pancreatic Cancer, Essiac tea and other "old-fashioned" treatments

Ad 12 - Is your liver cancer being treated by chemo via an Hepatic Artery Port?

Ad 11 - Susan has bone cancer and would love to talk to someone who also has bone cancer

Ad 10 - Author looking for complementary therapy stories - Is this you?

Ad 9 - Good news about treatment of colon cancer with liver metastases!

Ad 8 - Liver secondaries from bowel cancer

Ad 7 - Supporting a partner who has survived cancer

Ad 6 - Cervical cancer

Ad 5 - How do I support a family member with cancer when they don't want to talk about it?

Ad 4 - Nonsmall Cell Lung Cancer

Ad 3 - Adenocarcinoma of the stomach

Ad 1 - Living with liver secondaries

 

 

Ad 27
Enzyme therapy
Posted May 29, 2002

I'm writing to ask if any people you know have had any dealings with the A P John Institute for Cancer Research, in Connecticut. On their website, (www.apjohncancerinstitute.org) they give information about "CAAT" therapy, that involves the use of / deprivation of certain enzymes from the diet to fight cancer. I am considering buying some of their enzyme forumla to asssist in the treatment of my mother's metastatic bowel cancer, and I am trying to decide whether it is legitimate or just a rip-off. [Does anyone know anything about] the A P John Institute, and whether you have heard of such enzyme therapy, whether it's considered useful, etc, or if you can put me onto anyone else who can provide such information. Of course, if there is any place in Australia that provides such treatment, I'd like to hear about that, too.

Thank you for your assistance,
Angela

Email: Angela,
Australia.

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Ad 26
Supporting a friend
Posted May 29, 2002

My friend Liz has been battling lung cancer for a year now. She is 32 and has never smoked. She finished chemo before Christmas and had a brilliant check-up in April -- no recurrence in the lungs. However, they have just discovered secondary tumors in her brain. Her mainstream doctors say terminal, but she is not giving up.

What do you you suggest??
Susan

Email: Susan
Australia.

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Motivational advice and programming for a cancer patient
Posted May 29, 2002

Hi, my name is Howard. I’m not sure I’m emailing the right place but I’m trying anyway. I have a friend who has cancer and has undergone operations and chemo and basically been through hell. At the moment he is very depressed as he has had to struggle enormously to stay alive. I know there has to be some way to help him work through his grief, develop a program to get him motivated. Any suggestions or ideas?

Thanks,
Howard

Email: Howard
Australia.

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Cervical/vaginal cancer
Posted May 29, 2002

I finished radiation treatment for cervical/vaginal cancer 9 months ago. I am finding it so hard to cope with all the 'head' stuff that is happening right now. It is very hard to find any support for after treatment. My prognosis is great. Would like to talk to others who have same problem.

Thanks,
Robyn

Email: Robyn
Australia.

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Cancer of the uterus
Posted April 3, 2002

My name is Kylie from Bendigo, Victoria. I would like to offer my help to women who are or who have experienced cancer of the uterus. I am 29 years old and into my fourth year of being cancer free. I was 25 years old when diagnosed. I underwent chemotherapy and a hysterectomy. I would love to talk with other women, especially women around my age.

Regards,
Kylie.

Email: Kylie
Australia.

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Advanced Squamous Cancer
Posted April 3, 2002

My brother has advanced Squamous Cancer (large-cell lung cancer). He has it in his lung, lymphatics around the throat and in the liver. Just wondering if anyone has had this particular cancer and what treatment besides Chemo have they had? Any information would be appreciated.

Kind regards

Angi.

Email: Angi
Australia.

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Ad 21
Depression after pancreatic cancer diagnosis
Posted April 3, 2002

My mother was diagnosed with pancreatic cancer in the fall of 2001. She was severely jaundiced and lost a large amount of weight. The surgeons were able to operate and did a procedure known as the whipple. Medically, she is doing well - cancer count continues to go down. I would like to know if anyone reading this site, and who has pancreatic cancer or a family member who has this cancer, has experienced severe depression and whether or not an anti-depressant is a viable option. My mother is severely depressed and will not eat, get out of bed and talks constantly of dying even after receiving good news of further cancer count depletion.

I look forward to an answer.
Tanya

Email: Tanya
United Kingdom.

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Newly diagnosed with adenocarcinoma
Posted Nov 27, 2001

I have recently been diagnosed with adenocarcinoma & would appreciate speaking with someone who has the same.

Thanks,
Tony

Email: Tony
Australia.

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Positive attitude and a clinical trial but where are my friends?
Posted Oct 29, 2001

In December 1997, I had a Stage IV melanoma removed from my upper left arm. In September 2001, I had a lump removed from under the same arm, which proved to be malignant. A CT scan showed that I had advanced melanoma which had spread to my lungs and my liver. There are four small lumps in my lungs, the largest being 10 mm, and 5 in my liver, all under 10 mm.

I have made some drastic changes to my lifestyle as regards diet and attitude and have decided to participate in a clinical trial being held in Brisbane to develop a vaccine which can be reinjected to stimulate the immune system. I am a teacher but have not yet returned to work. After my surgery to remove some cancerous cells to develop this vaccine I hope to resume teaching.

I don't have a partner, as I have been separated for three years. Sadly, some of my closest friends cannot seem to cope with the news and tend to treat me as either something wrapped in cotton wool or someone for which there is no hope. Both of these, in my view, are not helpful and so I feel my strongest support group will be made up of those who do not have an emotional attachment to me.

I am happy to share my information with others - once an educationalist, always an educationalist!

Email: Sheila
Brisbane, Australia.

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Ad 18
What should I expect with pancreatic cancer?
Posted Oct 29, 2001

I have just received news that my father has pancreatic cancer. He has lost almost 25 kilograms and has had the bypass surgery. Can anyone help me prepare for what is to happen from here? What should I expect in the next few months? For the moment he is too weak and underweight to go through any of the other treatments.

Email: Erika.

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Advanced pancreatic cancer
Posted Oct 26, 2001

Does anyone know of someone with advanced Pancreatic Cancer who has been cured?? Can anyone tell me a bit about the course of this disease?

My father, 71, has Pancreatic Cancer that has spread to the liver and spine. He has not shown the classic symptoms of Pancreatic Cancer, being jaundiced and having severe weight loss. Also, X-rays have not shown a tumour in the pancreas (or bowel either). However the cancer in the liver has a 'high count' of hormones with cells from the pancreas and also from the bowel. They are calling it Pancreatic Cancer. (His father died of Pancreatuic cancer at age 63.) It is inoperable so the doctors are saying it will be chemotherapy but this will be only to 'control' the disease.

I am looking for a treatment with brighter prospects which has case histories of remission of advanced pancreatic cancer and which has at least some scientific support. Is this being too hopeful?

Email: Allan
Melbourne, Australia.

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Ad 16
Chronic Myloid Leukemia - making contact with others
Posted July 9, 2001

Hi, My name is Tim, I was diagnosed with Chronic Myloid Leukemia at the end of March while working in Singapore. I am now home in Melbourne going through various forms of treatment and would like to talk to others who are going through the same. Look forward to hearing from you.

Regards, Tim.

Email: Tim
Australia

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Non-Hodgkins Lymphoma - making contact with others
Posted June 26, 2001

Hi, my name is Trudy. My sister was diagnosed with NON-Hodgkins lymphoma last July, and since has undergone CHOP treatment. She was thought to be in remission but now requires more treatment in the form of stem cell transplant (using her own stem cells). I'm looking to make contact on her behalf with anyone that has had a similar experience.

Regards, Trudy.

Email: Trudy
Australia

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Secondary Liver Cancer - Final stage
Posted June 26, 2001

Hi, My mother who is 75 was diagonised last November with secondary liver cancer and it has come from the uterus. She had 5 lots of chemo and went really well with them, but it did not stop the cancer and now she is having 4.5 to 6 litres of fluid taken every 6 days. She gets so weak and tired and her feet are constantly swollen. I asked the specialist last week what he thought she would be like for my daughter's wedding in November this year and he told me that she would not be here then.

I want to know what to expect I have been told that the fluid build-up will continue and will have to be done more often. The specialist also wants to start looking at pallative care at either Westmead or St. Joseph's hospital at Auburn (Sydney). I really would like mum to come and stay with me for as long as possible, but she refuses and wants to stay at home.

Can I find out what to expect? Will she be in pain? She is in discomfort when the fluid builds up and she finds she gets really puffed out quickly and then she also has trouble talking. She also gets out of breath talking. I really want to know what mum is in for,

With regards,
Pat

Email: Pat
Australia

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Ad 13
Pancreatic Cancer
Posted June 26, 2001

My brother has pancreatic cancer that has mastasticized. He is 43.

Is there anyone out there that has tried 714 X? Essiac tea? Do you know of anyone that gives the shots of the tea like the old nurses did? Does anyone have suggestions for treatment?

Thanks very much,

Email: "Punky"
USA

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Ad 12
Is your liver cancer being treated by chemo
via an Hepatic Artery Port?
Posted June 25, 2001

I would like to contact others who have been treated for liver cancer (Dukes D Colon Cancer) metastases from the colon and who have are being treated by chemotherapy through a hepatic artery port. I was diagnosed on the 19 May 2000 and was operated on in June that year. I had an operation that removed a portion of the colon aswell as the gall bladder. A port was placed into the hepatic artery. I receive chemotherapy every fortnight being connected to a computerised pump from Monday to Friday from this port.

I was informed at the time that the average life expectancy was 2 years but the surgeon said he had patients still alive after 5 years. All the signs have been good and there has been some continuing reduction in the size of the liver tumors (about 20). It is not a cure but is seems to be good at controlling the deteriation of the liver. Love to hear from you.

Regards John

Email: John
Australia

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Bone cancer
Posted May 22, 2001

Hi, my name is Susan, I had breast cancer nearly 6 years ago. Now I have had bone cancer for the last 20 months. I am 47 years old and would like to talk to someone who has bone cancer. Thanks.

Email: Susan
Australia

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Author looking for stories
Facing cancer: Searching for solutions
Posted May 22, 2001

A book with the title above was published in 1989 and I am currently in the process of updating it for re-publication in 2002. Facing Cancer explored a number of alternative and complementary cancer therapies, and recorded the stories of people who had gained control of their cancer through them. It also looked at the attitudes of orthodox medical practioners to alternative treatments and therapists. If you have a personal success story of alternative treatment I would love to hear from you. If your story was included in the original book I would be delighted to update it in the new edition.

Book details
Facing Cancer: Searching for Solutions
Published by Collins Dove, Melbourne 1989
ISBN 0 85924 601 9

Please email me at: lizbyrski@hotmail.com
Australia

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Good News!
Colon Cancer with Liver metastases
Posted May 22, 2001

Wonderful professor specialising in latest techniques. My husband at 60 years of age was diagnosed May 2000 in Sydney. Prognosis: 6 - 18 months. Advanced liver metastases now treated with hepatic portal chemotherapy. No side effects except for tiredness. Every 3 months has scans and the latest revealed that the tumours, of which he had 20+, seem to be reducing in size.

You will find Professor Morris at St George Hospital in Sydney.
Good luck and let me know anybody else's discoveries.

Email: Nalda
Sydney, NSW
Australia

Editor's Note: Permission was sought from Professor Morris for his name to be quoted in this notice. He writes...

Thank you for asking me. Yes, I am happy with any info being made available as long as it's accurate, which this is.

DAVID L MORRIS
PROFESSOR OF SURGERY
St George Hospital

Kogarah, Sydney, NSW
Australia

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Liver secondaries from bowel cancer
Posted March 23, 2001

My father has recently undergone bowel surgery, at which time the surgeon discovered there were also cancer spots on the liver - November 2000. He has recovered terribly slowly after the operation, in and out of hospital, blood pressure dropping so low he couldn't stand let alone walk. He has lost a lot of weight, and a month ago was beginning to put a little back on, and walk without assistance for some distance. My father has however taken a turn backwards again now, and is coughing up loads of clear fluid - the specialists seem unaware of where this is coming from or how they can get rid of it. There was talk of him undergoing chemotherapy, but apparently he is too ill for this. What can we do? Are there any doctors you know who specialize in this area? My Father is 72 and before his operation was working as a volunteer, and very active, but he is fading before our eyes. Thank you.

Email: Jan
Melbourne, Victoria

Australia

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Supporting a partner who has survived cancer
Posted November 15, 2000

I would like to contact anyone who has had a life-long partner who has survived cancer but still feels very vulnerable. There seems to be so little support for family members who are often confused and unsure of how to live and support their loved one in this situation...even with the help of Gawler and the diet and meditation. Please contact me...maybe we can share some insights which will help us cope and keep us sane!

Email: Chrissy
North Queensland

Australia

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NB: Four Corners on ABC TV aired a report called "Surviving Survival" during October 2000 which deals with exactly the issues raised here by Chrissy. The transcript of the Four Corners report is available at http://www.abc.net.au/4corners/stories/4Cprograms_197277.htm - Ed.

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Stage 2 Cervical Cancer
Posted October 25, 2000

I am interested to hear from anyone who has had/does have Cervical Cancer. I have been diagnosed with Stage 2 cancer, and am about to start chemo for nine weeks followed by a hysterectomy. I have only known about this for 5 days and have my head in a spin......

Email: Sally
Australia

NB: Sally has proceeded with treatment and is doing well! - Ed.

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How do I support a family member with cancer
when they don't want to talk about it?
Posted October 5, 2000

I was hoping that someone would be able to help me to point my husband in the right direction. His father has been diagnosed with cancer of the prostate and unfortunately it has spread to his lungs. His step mother is the only one communicating to him about it at the moment as his father won't talk to him about it as he is too distressed. She has told him though the it is a 10 out of 10 rating which he feels must be the worst kind. As his father doesn't want to tell him anything else, he feels helpless with what he can do. We live in Hobart and his father lives in Canberra so it is difficult to just pop over to the house and and a chat. What can my husband do to help...or what can I do to help my husband? He is very stressed.

Thank you,
Anna

Australia

Email: Anna

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Nonsmall Cell Lung Cancer
Posted January 30, 2000

Hi everyone,

   This is important to me...so I am asking you to please forward it.   Please send to all contacts. If anyone you know has survived NONSMALL CELL LUNG CANCER, please contact me. My husband has it and I would like to know what treatment was used. Please forward to everyone on your contact list.  From the bottom of my heart I thank you.

   Thank you,
   Divya Singh

Bangalore-561229 India
   Divya Singh

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Adenocarcinoma
Posted October 3, 1999

A reader sends the following message...

I would like to talk to anyone who has been diagnosed
with adenocarcinoma of the stomach.
My email:  GNJB111

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Liver Secondaries
Posted August 5, 1999

Sue has been living with secondary cancers in her liver for more than 8 years*. She would love to be in email contact with other people in the same situation.

If this is you, please make contact by using the feedback form.
Your answer will be forwarded on to Sue.

*NB: This is now 12 years (2002).

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Created: June, 1999
Last update: July 15, 2002
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